Xtreme Softwarez - Scleroderma Information Videos

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SabiBinaful Says:

Apr 15, 2012 - I've had scleroderma(morphea) since I was 5 so about ten years now.. For a while I had to do this light therapie for about two years or so twice a week. I was lucky enough that it stopped and isn't active anymore. I never really knew exactly what it was nd am finally figuring it out so its easier to tell people what it is..Although I still hate that they ask me all the time!thx for the video was very helpful!:-)

totallytang2010 Says:

Oct 24, 2011 - what about taking cellcept? thats what i take with Methotrexate... becasue methotrexate makes me very sick when i take it in large doses...

CRUSHER2983 Says:

Oct 12, 2011 - i suffer from this idk what to do i went off my methotreczate because pain was to much i need help i hurt every morining whehn i wake idk what to do my stomach is warm all the time inside idk what to do:'(

rohitkhanna11 Says:

Sep 22, 2011 - My father has scleroderma from last 20 years his hands and feet are numb with lot of pain. Is there any cure for numbness?

XandraDekker Says:

Jul 7, 2011 - You have a beautiful film made with wonderful text . My name is Xandra Dekker and I'm also Scleroderma patient. In the Netherlands is little information to find about Scleroderma. That's why I started a blog. Here I have put a lot of information about Scleroderma and your videos posted there. gelukkige-vlinder.50plusser.nl to find out all about Scleroderma on my weblog and everything I enjoy. Strength and greetings from Xandra

annonthebeach Says:

May 20, 2011 - Mine started when I was 5. I think it is related to a vaccine. Mine was dormant for about 30 years, till I got a flu shot....then it became active again. Food allergies seem to make it worse.

annonthebeach Says:

hbcase2010 Says:

Apr 15, 2011 - I am a scleroderma patient and just want to thank you for this video and I will share it with my friends and family so they know what I am goin through, great informational video!!

asbawaexports Says:

Apr 8, 2011 - @eilaseel first of all every patient differ from the other so one needs to see the docter for the same as the oral medication may differ but the I.V remains the samet thats Cyclophospomide 500mg+25ml Meridecca(steroid) first day and then 2nd and 3rd day only Meridecca 25ml and for 1.5 years the same treatment would ensure that it never comes back...any other query feel free to ask.

eilaseel Says:

Feb 27, 2011 - hi friend! if you know about a cure, tell about it! how does it work? many diseases are caused by wrong diet, meaning bad food so you don't get all nourishment the body needs. i have seen many sick people getting cured from asthma, allergies, rheuma, migraine, fibromyalgi, psoriasis, diabetes etc etc.... just by skipping junk food and using vitamins, minerals and enzymes that make the digestion work right.

asbawaexports Says:

Feb 14, 2011 - for all who are concerned there is a miracle in the field of medicine in INDIA...here a team of docters found out the cure and my sister is one of the lucky patients who is under their treatment....we called her from chicago(usa) to get her the benefits.who ever is in need pls contact on +91-9810528006...i would love to help!

skiaspenboy Says:

Oct 23, 2010 - To be honest, there isnt going to be a cure, I have it so i can say this with a smile on my face :) <------- See? Now, how bout instead of complaining you make the best out of the life you got :D

skiaspenboy Says:

Oct 23, 2010 - I'm not the only kid to have this :D Im just very thankfull and blessed that its only localized in my left arm and shoulder. But it does make it difficult because im a guitar player and playing brings so much joy to me. But This are going great anyways! Its kinda cool because my whole arm looks like it got beat with a bat and people are like "Woah how'd you bruise your arm" and i say "Its not bruised, its a disease." Its a great way to get the ladies attention ;) Gotta make the best out of life!

vassiliki79 Says:

Oct 9, 2010 - thank you so much for posting this.i was diagnosed with this curse 15 years ago and my life has to tally changed because of scleroderma.people need to know about this and start caring.i would give anything ,i would do anything for a cure.

07mattii Says:

Oct 1, 2010 - por favor alguien qe lo subtitule :S

cheryl05able Says:

Jul 27, 2010 - I admire your courage and your video is excellent. You are beautiful and you inspired me,a fellow patient. I can relate to many of the things you speake about. I have had Pary Romberg since 11 and I am now 46 and have a pretty mormal life. I am blessed to have two healthy daughters, I advocate for rare diseases and Parry Romberg Syndrome. Thank you for this video, Cheryl Rick Klein

spooklefilms Says:

Jun 18, 2010 - very sad but very informative... thanks for sharing

wwwRickytvcom Says:

Jun 2, 2010 - I know what causes scleroderma. I know what causes the flare ups.

TheNevertoolate Says:

May 20, 2010 - Thank you My brother Walied was diagnozed in Oct 2007 by March 2009 he was dead . Since 2006 he was mis diagnosed, He got pneumonia and between the pneumonia and the scleroderma he lungs failed He wanted Stem Cell -Its hard Thank you for your courage

telltalehart Says:

Apr 1, 2010 - Thank you for sharing your story.

XXXxxToshitsunexxXXX Says:

Feb 17, 2010 - my mother has lived with scleroderma for 15 years now...she has been through multipule surgeries that has left her with no fingers on her hands or feet... she even had to have half of her right foot removed because the tissue died and withered and turned black.

steph743 Says:

Feb 10, 2010 - if you have scleroderma, please check out The Roadback Foundation. you can be cured. i'm on my "road back" right now and it's so much better and more effective, and MUCH safer, than traditional treatments. it's called the antibiotic protocol and it's all FDA approved, but since it's not the textbook way of treating scleroderma, most doctors are afraid to give it a shot. please, just check it out and make the decision for yourself. don't be afraid to fight for yourself. and never, never give up.